September 13th, 2007
Megan has had an eventful week! The doctors are preparing her for discharge by making sure all her evaluations are done.
She passed her hearing test this week. That was great news for me. I was actually worried that she had problems with her hearing since she can sleep through all the noise in the NICU!
She also had her 3rd eye exam which went great! He said we will follow up in about 2 weeks. Since she will be at home, we will have to give her the eye drops at home and take her into the doctor's office. I'm not thrilled about giving her eye drops, but I watched the nurses do it twice.
The occupations therapist came in to see how Megan is progressing and she is still right on track. However, she didn't get to evaluate her eyes to see if she can focus on a red ball because Megan had just gotten her eye drops. Everything else looks great.
Megan is holding her temperature well and still in the open crib. Over the past week or two, she has been more alert when she is awake and it has been so much fun to play with her! She is nursing so well that the doctor has decreased her supplement from 20 cc down to 10 cc. They give her that supplement through her tube after she nurses to make sure she is getting enough food. She is still steadily gaining weight, so we are pretty sure that she is getting plenty of breastmilk. She is now 4 lbs 12.8 oz!!! She has been getting better and better with bottlefeeding. Monday night she took all 4 bottles, Tuesday night she took 3 of the 4 bottles and I have yet to find out how she did last night. Tuesday night they gave her a break on the one because the nurse thought she was just too tired.
I spoke with Dr. Voora yesterday. Dr. Voora and Dr. Omar did accept Megan as a patient, so Bob and I were so happy about that. It's so nice that her pediatrician already knows her so well! Dr. Voora said that he expects to see the feeding tube come out Friday or Saturday and for her to be discharged early next week - still around Monday or Tuesday. He is very pleased with her progress!
We have the home monitor set up and we are scheduled for training tomorrow afternoon. From they way they describe it, it seems pretty easy to operate. On the plus side, Megan has not had any serious apneas or brady's since going off of caffeine (knock on wood!!). Apnea shouldn't be a serious problem; however, she still may have some. She does do periodic breathing which is what I am concerned with because the monitor won't necessarily pick that up. She will take a cluster of breaths and then pause in breathing for a few seconds, take a cluster of breaths, pause, etc. It usually doesn't affect her stats, but sometimes I can see her change color when doing it. We then have to remind her to breathe by tickling her foot or rubbing her neck. Not exactly what a Mother wants to see!!
I have also been asked to talk on the radio tomorrow during a Children's Miracle Network radio-thon. They will just ask questions about Megan and the equipment that she has used. A lot of the equipment that Megan used during her stay was either donated or partially donated by the Children's Miracle Network. I know Bob and I will be more apt to donate to them or the March of Dimes now! Both of them support premature babies.
I took an autograph mat in to the hospital for all of Megan's nurses to sign - exactly like the one that was at the shower. I thought it would be a great momento for Megan to have when she is older so she can remember all the men and women that saved her life. All the nurses comment on how much they love Megan and how much they will miss her. We will definitely keep in touch with pictures and I already look forward to the NICU picnic next year.
These past couple weeks have gone by so fast, probably because they have been soooo busy!! Many people have been telling us to get prepared because soon our days will be so buys and we won't get any sleep. Bob and I are actually really looking forward to her coming home. No more trips to the hospital 4 times a day, no more going off of someone else's schedule, no more leaving our daughter when we just want to sit by her bedside for hours.... We can't wait for Bob to come home from work and we can all sit in our pj's as a family, hanging out. Even Molly is excited for Meg to come home. She can smell her actual sister instead of just her clothes :)
Well, time to get ready to go see my little girl!!